Paediatric tube-feeding: An agenda for care improvement and research.
Identifieur interne : 000034 ( Main/Exploration ); précédent : 000033; suivant : 000035Paediatric tube-feeding: An agenda for care improvement and research.
Auteurs : Nick Hopwood [Australie, Afrique du Sud] ; Khadeejah Moraby [Australie] ; Ann Dadich [Australie] ; Jessica Gowans [Australie] ; Keren Pointon [Australie] ; Anna Ierardo [Australie] ; Claire Reilly [Australie] ; Maryanne Syrmis [Australie] ; Nadine Frederiksen [Australie] ; Kate Disher-Quill [Australie] ; Noémi Scheuring [Hongrie] ; Rudolf Heves [Hongrie] ; Chris Elliot [Australie]Source :
- Journal of paediatrics and child health [ 1440-1754 ] ; 2021.
Abstract
This article presents an agenda to improve the care and wellbeing of children with paediatric feeding disorder who require tube feeding (PFD-T). PFD-T requires urgent attention in practice and research. Priorities include: routine collection of PFD-T data in health-care records; addressing the tube-feeding lifecycle; and reducing the severity and duration of disruption caused by PFD-T where possible. This work should be underpinned by principles of involving, respecting and connecting families.
DOI: 10.1111/jpc.15286
PubMed: 33277951
Affiliations:
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Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Child Health Research Centre, University of Queensland, Brisbane, Queensland</wicri:regionArea><wicri:noRegion>Queensland</wicri:noRegion></affiliation></author><author><name sortKey="Syrmis, Maryanne" sort="Syrmis, Maryanne" uniqKey="Syrmis M" first="Maryanne" last="Syrmis">Maryanne Syrmis</name><affiliation wicri:level="1"><nlm:affiliation>Speech Pathology Department, Queensland Children's Hospital, Brisbane, Queensland, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Speech Pathology Department, Queensland Children's Hospital, Brisbane, Queensland</wicri:regionArea><wicri:noRegion>Queensland</wicri:noRegion></affiliation></author><author><name sortKey="Frederiksen, Nadine" sort="Frederiksen, Nadine" uniqKey="Frederiksen N" first="Nadine" last="Frederiksen">Nadine Frederiksen</name><affiliation wicri:level="1"><nlm:affiliation>Department of Occupational Therapy and Music Therapy, Queensland Children's Hospital, Brisbane, Queensland, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Department of Occupational Therapy and Music Therapy, Queensland Children's Hospital, Brisbane, Queensland</wicri:regionArea><wicri:noRegion>Queensland</wicri:noRegion></affiliation></author><author><name sortKey="Disher Quill, Kate" sort="Disher Quill, Kate" uniqKey="Disher Quill K" first="Kate" last="Disher-Quill">Kate Disher-Quill</name><affiliation wicri:level="1"><nlm:affiliation>Department of Paediatrics, St George Hospital, Sydney, New South Wales, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Department of Paediatrics, St George Hospital, Sydney, New South Wales</wicri:regionArea><wicri:noRegion>New South Wales</wicri:noRegion></affiliation></author><author><name sortKey="Scheuring, Noemi" sort="Scheuring, Noemi" uniqKey="Scheuring N" first="Noémi" last="Scheuring">Noémi Scheuring</name><affiliation wicri:level="3"><nlm:affiliation>Department of Pediatrics, Heim Pál National Institute of Pediatrics, Budapest, Hungary.</nlm:affiliation><country xml:lang="fr">Hongrie</country><wicri:regionArea>Department of Pediatrics, Heim Pál National Institute of Pediatrics, Budapest</wicri:regionArea><placeName><settlement type="city">Budapest</settlement><region nuts="2">Hongrie centrale</region></placeName></affiliation></author><author><name sortKey="Heves, Rudolf" sort="Heves, Rudolf" uniqKey="Heves R" first="Rudolf" last="Heves">Rudolf Heves</name><affiliation wicri:level="3"><nlm:affiliation>Educational Technology, Web-Medu Health and Lifestyle Consulting Private Limited Company (Member of Rufusz Group), Budapest, Hungary.</nlm:affiliation><country xml:lang="fr">Hongrie</country><wicri:regionArea>Educational Technology, Web-Medu Health and Lifestyle Consulting Private Limited Company (Member of Rufusz Group), Budapest</wicri:regionArea><placeName><settlement 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Studies, University of Stellenbosch, Stellenbosch</wicri:regionArea><wicri:noRegion>Stellenbosch</wicri:noRegion></affiliation></author><author><name sortKey="Moraby, Khadeejah" sort="Moraby, Khadeejah" uniqKey="Moraby K" first="Khadeejah" last="Moraby">Khadeejah Moraby</name><affiliation wicri:level="1"><nlm:affiliation>Central Early Childhood and Families Service, Allied Health, Women's and Children's Health Network, Adelaide, South Australia, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Central Early Childhood and Families Service, Allied Health, Women's and Children's Health Network, Adelaide, South Australia</wicri:regionArea><wicri:noRegion>South Australia</wicri:noRegion></affiliation></author><author><name sortKey="Dadich, Ann" sort="Dadich, Ann" uniqKey="Dadich A" first="Ann" last="Dadich">Ann Dadich</name><affiliation wicri:level="1"><nlm:affiliation>School of Business, Western Sydney University, Sydney, New South Wales, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>School of Business, Western Sydney University, Sydney, New South Wales</wicri:regionArea><wicri:noRegion>New South Wales</wicri:noRegion></affiliation></author><author><name sortKey="Gowans, Jessica" sort="Gowans, Jessica" uniqKey="Gowans J" first="Jessica" last="Gowans">Jessica Gowans</name><affiliation wicri:level="1"><nlm:affiliation>Child Health Research Centre, University of Queensland, Brisbane, Queensland, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Child Health Research Centre, University of Queensland, Brisbane, Queensland</wicri:regionArea><wicri:noRegion>Queensland</wicri:noRegion></affiliation></author><author><name sortKey="Pointon, Keren" sort="Pointon, Keren" uniqKey="Pointon K" first="Keren" last="Pointon">Keren Pointon</name><affiliation wicri:level="1"><nlm:affiliation>Child Health Research Centre, University of Queensland, Brisbane, Queensland, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Child Health Research Centre, University of Queensland, Brisbane, Queensland</wicri:regionArea><wicri:noRegion>Queensland</wicri:noRegion></affiliation></author><author><name sortKey="Ierardo, Anna" sort="Ierardo, Anna" uniqKey="Ierardo A" first="Anna" last="Ierardo">Anna Ierardo</name><affiliation wicri:level="1"><nlm:affiliation>Department of Paediatrics, St George Hospital, Sydney, New South Wales, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Department of Paediatrics, St George Hospital, Sydney, New South Wales</wicri:regionArea><wicri:noRegion>New South Wales</wicri:noRegion></affiliation></author><author><name sortKey="Reilly, Claire" sort="Reilly, Claire" uniqKey="Reilly C" first="Claire" last="Reilly">Claire Reilly</name><affiliation wicri:level="1"><nlm:affiliation>Child Health Research Centre, University of Queensland, Brisbane, Queensland, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Child Health Research Centre, University of Queensland, Brisbane, Queensland</wicri:regionArea><wicri:noRegion>Queensland</wicri:noRegion></affiliation></author><author><name sortKey="Syrmis, Maryanne" sort="Syrmis, Maryanne" uniqKey="Syrmis M" first="Maryanne" last="Syrmis">Maryanne Syrmis</name><affiliation wicri:level="1"><nlm:affiliation>Speech Pathology Department, Queensland Children's Hospital, Brisbane, Queensland, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Speech Pathology Department, Queensland Children's Hospital, Brisbane, Queensland</wicri:regionArea><wicri:noRegion>Queensland</wicri:noRegion></affiliation></author><author><name sortKey="Frederiksen, Nadine" sort="Frederiksen, Nadine" uniqKey="Frederiksen N" first="Nadine" last="Frederiksen">Nadine Frederiksen</name><affiliation wicri:level="1"><nlm:affiliation>Department of Occupational Therapy and Music Therapy, Queensland Children's Hospital, Brisbane, Queensland, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Department of Occupational Therapy and Music Therapy, Queensland Children's Hospital, Brisbane, Queensland</wicri:regionArea><wicri:noRegion>Queensland</wicri:noRegion></affiliation></author><author><name sortKey="Disher Quill, Kate" sort="Disher Quill, Kate" uniqKey="Disher Quill K" first="Kate" last="Disher-Quill">Kate Disher-Quill</name><affiliation wicri:level="1"><nlm:affiliation>Department of Paediatrics, St George Hospital, Sydney, New South Wales, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Department of Paediatrics, St George Hospital, Sydney, New South Wales</wicri:regionArea><wicri:noRegion>New South Wales</wicri:noRegion></affiliation></author><author><name sortKey="Scheuring, Noemi" sort="Scheuring, Noemi" uniqKey="Scheuring N" first="Noémi" last="Scheuring">Noémi Scheuring</name><affiliation wicri:level="3"><nlm:affiliation>Department of Pediatrics, Heim Pál National Institute of Pediatrics, Budapest, Hungary.</nlm:affiliation><country xml:lang="fr">Hongrie</country><wicri:regionArea>Department of Pediatrics, Heim Pál National Institute of Pediatrics, Budapest</wicri:regionArea><placeName><settlement type="city">Budapest</settlement><region nuts="2">Hongrie centrale</region></placeName></affiliation></author><author><name sortKey="Heves, Rudolf" sort="Heves, Rudolf" uniqKey="Heves R" first="Rudolf" last="Heves">Rudolf Heves</name><affiliation wicri:level="3"><nlm:affiliation>Educational Technology, Web-Medu Health and Lifestyle Consulting Private Limited Company (Member of Rufusz Group), Budapest, Hungary.</nlm:affiliation><country xml:lang="fr">Hongrie</country><wicri:regionArea>Educational Technology, Web-Medu Health and Lifestyle Consulting Private Limited Company (Member of Rufusz Group), Budapest</wicri:regionArea><placeName><settlement type="city">Budapest</settlement><region nuts="2">Hongrie centrale</region></placeName></affiliation></author><author><name sortKey="Elliot, Chris" sort="Elliot, Chris" uniqKey="Elliot C" first="Chris" last="Elliot">Chris Elliot</name><affiliation wicri:level="1"><nlm:affiliation>Department of Paediatrics, St George Hospital, Sydney, New South Wales, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Department of Paediatrics, St George Hospital, Sydney, New South Wales</wicri:regionArea><wicri:noRegion>New South Wales</wicri:noRegion></affiliation><affiliation wicri:level="1"><nlm:affiliation>Department of Community Child Health, Sydney Children's Hospital Randwick, Sydney, New South Wales, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Department of Community Child Health, Sydney Children's Hospital Randwick, Sydney, New South Wales</wicri:regionArea><wicri:noRegion>New South Wales</wicri:noRegion></affiliation><affiliation wicri:level="1"><nlm:affiliation>School of Women's and Children's Health, University of New South Wales, Sydney, New South Wales, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>School of Women's and Children's Health, University of New South Wales, Sydney, New South Wales</wicri:regionArea><wicri:noRegion>New South Wales</wicri:noRegion></affiliation></author></analytic><series><title level="j">Journal of paediatrics and child health</title><idno type="eISSN">1440-1754</idno><imprint><date when="2021" type="published">2021</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en">This article presents an agenda to improve the care and wellbeing of children with paediatric feeding disorder who require tube feeding (PFD-T). PFD-T requires urgent attention in practice and research. Priorities include: routine collection of PFD-T data in health-care records; addressing the tube-feeding lifecycle; and reducing the severity and duration of disruption caused by PFD-T where possible. This work should be underpinned by principles of involving, respecting and connecting families.</div></front></TEI><pubmed><MedlineCitation Status="In-Process" Owner="NLM"><PMID Version="1">33277951</PMID><DateRevised><Year>2021</Year><Month>02</Month><Day>22</Day></DateRevised><Article PubModel="Print-Electronic"><Journal><ISSN IssnType="Electronic">1440-1754</ISSN><JournalIssue CitedMedium="Internet"><Volume>57</Volume><Issue>2</Issue><PubDate><Year>2021</Year><Month>02</Month></PubDate></JournalIssue><Title>Journal of paediatrics and child health</Title><ISOAbbreviation>J Paediatr Child Health</ISOAbbreviation></Journal><ArticleTitle>Paediatric tube-feeding: An agenda for care improvement and research.</ArticleTitle><Pagination><MedlinePgn>182-187</MedlinePgn></Pagination><ELocationID EIdType="doi" ValidYN="Y">10.1111/jpc.15286</ELocationID><Abstract><AbstractText>This article presents an agenda to improve the care and wellbeing of children with paediatric feeding disorder who require tube feeding (PFD-T). PFD-T requires urgent attention in practice and research. Priorities include: routine collection of PFD-T data in health-care records; addressing the tube-feeding lifecycle; and reducing the severity and duration of disruption caused by PFD-T where possible. This work should be underpinned by principles of involving, respecting and connecting families.</AbstractText><CopyrightInformation>© 2020 Paediatrics and Child Health Division (The Royal Australasian College of Physicians).</CopyrightInformation></Abstract><AuthorList CompleteYN="Y"><Author ValidYN="Y"><LastName>Hopwood</LastName><ForeName>Nick</ForeName><Initials>N</Initials><Identifier Source="ORCID">0000-0003-2149-5834</Identifier><AffiliationInfo><Affiliation>School of International Studies and Education, University of Technology Sydney, Broadway, New South Wales, Australia.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Department of Curriculum Studies, University of Stellenbosch, Stellenbosch, South Africa.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Moraby</LastName><ForeName>Khadeejah</ForeName><Initials>K</Initials><AffiliationInfo><Affiliation>Central Early Childhood and Families Service, Allied Health, Women's and Children's Health Network, Adelaide, South Australia, Australia.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Dadich</LastName><ForeName>Ann</ForeName><Initials>A</Initials><Identifier Source="ORCID">0000-0001-5767-1794</Identifier><AffiliationInfo><Affiliation>School of Business, Western Sydney University, Sydney, New South Wales, Australia.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Gowans</LastName><ForeName>Jessica</ForeName><Initials>J</Initials><AffiliationInfo><Affiliation>Child Health Research Centre, University of Queensland, Brisbane, Queensland, Australia.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Pointon</LastName><ForeName>Keren</ForeName><Initials>K</Initials><AffiliationInfo><Affiliation>Child Health Research Centre, University of Queensland, Brisbane, Queensland, Australia.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Ierardo</LastName><ForeName>Anna</ForeName><Initials>A</Initials><AffiliationInfo><Affiliation>Department of Paediatrics, St George Hospital, Sydney, New South Wales, Australia.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Reilly</LastName><ForeName>Claire</ForeName><Initials>C</Initials><AffiliationInfo><Affiliation>Child Health Research Centre, University of Queensland, Brisbane, Queensland, Australia.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Syrmis</LastName><ForeName>Maryanne</ForeName><Initials>M</Initials><Identifier Source="ORCID">0000-0002-7036-6134</Identifier><AffiliationInfo><Affiliation>Speech Pathology Department, Queensland Children's Hospital, Brisbane, Queensland, Australia.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Frederiksen</LastName><ForeName>Nadine</ForeName><Initials>N</Initials><AffiliationInfo><Affiliation>Department of Occupational Therapy and Music Therapy, Queensland Children's Hospital, Brisbane, Queensland, Australia.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Disher-Quill</LastName><ForeName>Kate</ForeName><Initials>K</Initials><AffiliationInfo><Affiliation>Department of Paediatrics, St George Hospital, Sydney, New South Wales, Australia.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Scheuring</LastName><ForeName>Noémi</ForeName><Initials>N</Initials><AffiliationInfo><Affiliation>Department of Pediatrics, Heim Pál National Institute of Pediatrics, Budapest, Hungary.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Heves</LastName><ForeName>Rudolf</ForeName><Initials>R</Initials><AffiliationInfo><Affiliation>Educational Technology, Web-Medu Health and Lifestyle Consulting Private Limited Company (Member of Rufusz Group), Budapest, Hungary.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Elliot</LastName><ForeName>Chris</ForeName><Initials>C</Initials><Identifier Source="ORCID">0000-0002-4817-5614</Identifier><AffiliationInfo><Affiliation>Department of Paediatrics, St George Hospital, Sydney, New South Wales, Australia.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Department of Community Child Health, Sydney Children's Hospital Randwick, Sydney, New South Wales, Australia.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>School of Women's and Children's Health, University of New South Wales, Sydney, New South Wales, Australia.</Affiliation></AffiliationInfo></Author></AuthorList><Language>eng</Language><GrantList CompleteYN="Y"><Grant><Agency>Early Life Determinants of Health Clinical Academic Group, Maridulu Budyari Gumal</Agency><Country></Country></Grant></GrantList><PublicationTypeList><PublicationType UI="D016428">Journal Article</PublicationType></PublicationTypeList><ArticleDate DateType="Electronic"><Year>2020</Year><Month>12</Month><Day>05</Day></ArticleDate></Article><MedlineJournalInfo><Country>Australia</Country><MedlineTA>J Paediatr Child Health</MedlineTA><NlmUniqueID>9005421</NlmUniqueID><ISSNLinking>1034-4810</ISSNLinking></MedlineJournalInfo><CitationSubset>IM</CitationSubset></MedlineCitation><PubmedData><History><PubMedPubDate PubStatus="received"><Year>2020</Year><Month>09</Month><Day>21</Day></PubMedPubDate><PubMedPubDate PubStatus="revised"><Year>2020</Year><Month>10</Month><Day>21</Day></PubMedPubDate><PubMedPubDate PubStatus="accepted"><Year>2020</Year><Month>11</Month><Day>17</Day></PubMedPubDate><PubMedPubDate PubStatus="pubmed"><Year>2020</Year><Month>12</Month><Day>6</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="medline"><Year>2020</Year><Month>12</Month><Day>6</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="entrez"><Year>2020</Year><Month>12</Month><Day>5</Day><Hour>8</Hour><Minute>33</Minute></PubMedPubDate></History><PublicationStatus>ppublish</PublicationStatus><ArticleIdList><ArticleId IdType="pubmed">33277951</ArticleId><ArticleId IdType="doi">10.1111/jpc.15286</ArticleId></ArticleIdList><ReferenceList><Title>References</Title><Reference><Citation>Hopwood N, Elliot C, Moraby K, Dadich A. 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